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Expert's Corner
Ask the FounderVBF Announces "Ask The VBF Founder." Linda Rozell-Shannon is the leading lay expert (non doctor) in the world on the subject of vascular birthmarks. Babies with Birthmarks™Our newest program - guidelines for physicians to follow to diagnose and treat vascular birthmarks with the earliest intervention. Recent Medical Papers and Research
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After only two days of her birth the doctor told us about Klippel Trenauney and Proteus Syndromes. So we started to go to a lot of doctors seeking treatment. It was terrible to see their faces full of doubts. It has been a hard time for us, because we couldn’t understand what we did wrong or if she would live. Especially because we didn’t have anyone who had passed through the same situation. No one could understand what we were feeling. The most important doctor was the pediatrician who knew about the syndromes and has been following Gabriela till now. Today, he is more than a doctor to us.
It was our first contact with other patients with Hemangioma and that made all the difference in the world to us. Discovering people to exchange experiences brought hope and the desire to fight for everybody. Gabriela has undergone 2 plastic surgeries and will undergo another one this year. The surgeries are to correct her feet and to use OK 432 in lymphangioma areas. She also uses laser on superficial lesions. Sometimes she goes to Hospital because of infection. We are worried about her social life and we always go out with her to look people in the face. We believe that we are preparing society for accepting our little girl. It’s incredible how much our attitudes have influenced people around us. Mostly, when someone comes up to us it is to bring some hope.
We do everything to make her life as normal as it could be. Since Gabriela was born our life has changed a lot. For the better! We thank God for this gift. She is a great fighter, she never gives up. She is a winner. She is an example.
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What if the VBF earned a penny every time you searched the Internet? Now it can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social mission... every time you use GoodSearch, money is generated to support the mission of VBF. Just go to www.goodsearch.com and be sure to enter the Vascular Birthmarks Foundation as the charity you want to support. The more people who use this site, the more money we'll earn so please spread the word! Go to http://www.goodsearch.com
If you think your child has a hemangioma Click Here...

Chapters of the VBFVBF Partners Anomalie Vasculaire Site for French speakers worldwide, and friend of VBF that offers support and information about vascular birthmarks |
Publications for Parents:
You will need Adobe's Acrobat Reader to open and print the pdf documents. If you do not already have it installed, you can find it here.
You will need Microsoft's Word to open and print the Word Documents.
RECRUITING SUBJECTS FOR A RESEARCH STUDY ON FACIAL BIRTHMARKS